Thoughtful Reflections

I had an entirely different post written and edited ready to be published. I was going to make some final touches this morning when I went out for coffee, but I forgot my flash drive.  When I finally got around to grabbing a beer with my dinner and publish, I forgot my flash drive. Again.

So. This is what I started writing this morning and what I am finishing right now with the last of my beer (a bitter at Falling Sky, in case you’re interested).

Spending my time writing instead of working has been cathartic. I know my writing pretty much sucks at this point. I also know it is only my mother, and two or so random friends (with a couple of strangers added to the mix), who are the only people reading this crap. But that doesn’t stop me from wanting to say Thank You! Even if this is the only post you have ever begun to read, and you have absolutely no intention of reading to the end, I still would like to Thank You!

I need this time to process and untangle the knot that has been residing in my heart for the past six years. Many of the friends I left behind at the pool never had the opportunity to know me without the influence of the knot of dread that has been harboring in my breast since I lost my friendship with Red. I wish I could have had more time to experience being the person I am, without the stress from harassment and the high blood sugars it causes, while working at the pool, but I know it would be of no use. The people working there believe they know who I am. They believe that the crabby, grumpy and unpredictable Sam is the real Sam I am. How can they possibly understand how much of my personality is hijacked when I am stressed, or hyperglycemic, or tired from managing my diabetes all night instead of sleeping, when I have only begun to understand how diabetes affects me for myself?

The stress derived from my encounter with sexual harassment resulted in my strenuous struggle with Post Traumatic Stress Disorder. I was never officially diagnosed because I never told anyone about what happened. I suffered in silence for years. I feel free now knowing I will no longer suffer, nor be silent, but that knowledge does nothing to erase the emotional knot I have been living with since I refused to have sex with Red. This knot has become an entity within myself. It can, at times, be a puppet master pulling at my emotional strings and causing me to behave in obstinate and cantankerous ways that are misperceived by those who don’t know me as being ‘bitchy.’ But, I am not a bitch.

I repeat, I am not a bitch. I am a strong-headed, loud mouthed, sarcastic, and fundamentally independent woman. I speak in a manner that is blunt and direct with no flowering or sugaring of words (after all, I am diabetic and don’t need any more unnecessary sugar in my life). My manner can be abrasive, offensive, and judgmental, but I never speak with the intention of causing harm. I may not be very nice most of the time, but I am always kind.

The problem is that my kindness is easily disguised, or hidden, by the puppet master crawling around in the dank safety of my heart’s infernal knot. This damn knot has been an insufferable curse I have never been able to truly escape, but, over the years, I have learned how to begin releasing the negativity infecting my heart’s true purpose born from the traumatic experience of harassment. I no longer blame Red. There is no need. I accepted long ago that blaming anyone is useless and more harmful to myself then to them. I was lucky enough to not leave the pool before I had the experience of knowing that I had healed from my trauma caused by Red’s actions.

On the same morning when I had my encounter with Amanda (which became the crucible of my decision to quit) I finally had an encounter with Red that was as calm, peaceful, and uneventful as the days before his solicitations for sex. Being able to speak with Red, to have him speak back respectfully, and feeling safe enough to hand him a pen to write with, proved to me beyond a doubt that whatever problems Amanda believed she had with me were of her own making, and existed within her own mind. What I had ‘done’ to upset her so much was more a consequence of her own emotional immaturity and past behavior. The maturity that evolved from my personal suffering over the years had already made its mark. My diabetes, however, that is an entirely different story, and the foundation upon which the Park District has been capable of marginalizing both me and the issues I brought to their attention.

Liberation is a CHOICE you must Act upon

I quit my job Wednesday morning.

I started my shift at 8:30 and waited until my boss showed up to start his shift. He arrived at 9:40 and disappeared upstairs in his office. My rotation for lifeguarding the pool ended at 10:00 (when his Building Supervisor shift began) and I went to the bathroom to pee before heading upstairs to confront my boss and give him my key to the building.

My first words to him were: “I have suffered years of harassment and discrimination ever since you allowed Red to manipulate you into retaliating against me for not having sex with him.”

The last words I said to him before I walked away were: “I will not allow you the opportunity to marginalize me again.”

It was the most rewarding and liberating act I have ever performed since the moment of my birth!

My story is long and it deeply involves the hidden and unspoken forces of sexism, racism, and our seemingly collective inability to take responsibility for our personal perceptions of ‘others’ who happen to be ‘different’.

The trouble began over six years ago when an older male coworker of mine was going through a nasty second divorce. Some of us suspected he was coming to work at least slightly intoxicated because of the smell of alcohol and his glassy, bloodshot eyes. One day, after his shift ended and he was dressed in his regular clothes, he cornered me in the back office while I was still on shift and in my lifeguard uniform. There are two chairs in the small back office and he placed himself so I was unable to get up from my chair and walk away without having to physically push past him. I felt extremely uncomfortable the moment he sat down, but I didn’t say anything because I had become used to the feeling of being uncomfortable within his presence.

I remember feeling offended when I realized I was unable to simply get up and walk away from him if I wanted to. He hadn’t said or done anything to scare me, I simply did not appreciate feeling ‘forced’ to participate in his conversation. He started by telling me how much he appreciated my friendship and how attracted he was to me. At this point, the only thought in my head was “Shit. He’s finally crossed over into ‘creepy old man’ territory.”

***This is a territory most younger women must learn to navigate without a map or directions. I once had a senior male patron at the pool say to me, “You are looking good today, Sam! I can say that because I’m old (wink, wink)!” I stood in my guard uniform, while being paid to spend my time observing our patrons and respond to any medical emergency, and I calmly responded, “Just because you think you can say something, doesn’t mean you should.” These are the types of comments some people would complain about and I would end up being in trouble with my boss.***

Red asked me if I wanted to be “more than friends” with him. My immediate reaction was to feel disgust and disdain for his approach. At the time he was still married and we had enjoyed a three year friendship at work where he would share stories about his kids who are closer to my age than he is. I didn’t want to hurt his feelings anymore than I already knew they were hurting from his current life situation. I tried to be ‘lady-like’ and ‘polite’ and ‘respectful’ and ‘nice’ — just like I had been taught to do since being a little girl while learning how to ‘behave properly’ with my elders.

I thanked Red for his compliment and told him, “No. I do not want to be ‘more than friends.'”  I smiled when I said it because that was the ‘right’ thing to do. I did not challenge him on his approach, or his assumption that I would simply be willing to have sex with him (nor his obvious lack of respect for me by not bothering to first ask me out on a ‘date‘). This was not the first time I have had to turn away a man who wanted to have sex with me. This was, however, the only time that the man I turned away did not understand the word “NO“.

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I have free time now. LOTS of free time. I’m looking forward to spending my free time writing my story, telling my story, sharing my story, and using my story to erradicate the dark Injustice of discrimination with the light of Awareness. The experiences I survived at my old job have given me a personal insight into the deep and abiding grip blind ignorance can have on the best of people. As a direct consequence of the sexual harassment I suffered from my co-worker, Red Liegel, and his subsequent behavior and actions (including two episodes of verbal assault at work), I have also suffered years of sustained and systemic gender and disability (for insulin-dependent diabetes) discrimination from the administration controlling my old workplace.

I even have possession of a copy of an opinion, written by a co-worker currently still employed at my last place of employment, expressing her belief that State-sanctioned slavery, supported by Congress and the 13th Amendment, is a reasonable and possible solution for the problem of illegal immigration within our nation. I found this opinion one day at work while looking for a memo, with the combination to unlock the money for the cashier, that had been taken out of my box. It was in her box, in the employee breakroom, where it could have just as easily been found by one of the high school swim team kids who were coming in to begin their practice. I shared the opinion with the head swim coach, but, despite his horror and disgust, he did nothing about it.

I am writing my story so I can send it out into the world. I want to share it with anyone who can use it to help make the world a better place to live. I will be sharing my story with newspapers, magazines, neighborhood groups, non-profit organizations, my City Council, the local school board, as well as sharing my reprimand to the Board of Directors of my old employer. I am looking forward to spending my free time making a difference in the world I live in.

I make my first vow, right now and right here, to write every day.

Everyday I will post a new part of my story. I will use this commitment as a way to improve my writing, and as a way to remember all of the smaller injustices I suffered that, at the time, were subsumed beneath the overall oppression of my situation. I will share my memories with everyone who is willing to listen.

Please ask me questions. Please feel welcome to participate with me in dialogue. I look forward to engaging with others so we may share ALL our stories and provide the support we ALL deserve!

It is only in silence when we allow ourselves to be harmed.

***The names of the guilty will not be changed. I will not protect them. I will say what happened to me from my perspective. I will share my story.***

Does it Show?

 

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Wawona Point with Half Dome in the background

This was me (on the left) ten years ago. Before I knew my pancreas was no longer working. I look at myself now and I can see the disease. I can see how thin I was. At the time, I figured I was losing weight because I had been hiking and carrying a large pack all summer. This was the end of the season, and the couple and I had spent three days hiking to Little Yosemite Valley as a base camp for a one day summit of Half Dome. This picture was taken at Wawona Point where we had left the cars parked.

A friend (who has Lyme’s Disease, has restricted her gluten intake, and seen a drastic reduction in her body’s inflammation) said to me yesterday, “I can tell when I look at someone that they have inflammation and are swollen, just like I bet you can see if someone is diabetic.”

I love my friend. But I wanted to slap her for saying, and believing, something so incredibly stupid. Instead, I sighed and chose a response that wasn’t as snarky as my first impulse (“Yeah, right, because we all wear a bright fucking neon across our foreheads”)– I said, “I can’t tell if someone is diabetic unless I see them pull out a pancreas from their pocket.”

Simple, right? Sometimes it amazes me, and strikes me silent, when people share their

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Gardening with my MedTronic

deep ignorance of diabetes. I have personally only met FIVE other people in my life who  I know are Type 1, and only two were on a pump. I randomly met the two people  on pumps at a coffee shop and a bar here in Eugene during the past two years. They both were incredibly gratifying encounters. I dated a man a few years before I was diagnosed and I knew he was Type 1, but I never saw him take a shot. In fact, I only saw him check his blood once when we were stuck in traffic on a long road trip. I knew he carried his glucometer with him (I didn’t know that was what it was called) because he carried it in an old leather cigar case he had found, and I simply knew he always had that case with him. In the six months I dated him I never learned anything more about his diabetes. It never occurred to me that it meant anything.

I forgive my friend. She has no need to understand diabetes to the depth that I am required to. Her ignorance is my fault for not asking her to become more aware and educated when talking to me about my disease. I’ve done some cursory reading on the internet about her disease, and I ask her questions, but mostly I let her rant when she feels overwhelmed by the loneliness, anger, fear, and anxiety (that I am intimately familiar with from my own experiences) which accompanies a life-altering diagnosis.

I have struggled from the very beginning to control my blood sugar levels. When I first started my diabetic journey, I would hear healthcare professionals call me “uncontrolled.” I hate, HATEHATE that label. With a passion! I was personally offended every time I heard it because the only thought I had was:

“F*CK YOU! I am doing EVERYTHING I possibly F*CKING can to control this F*CKING disease. How dare you suggest I don’t control my health!?!?!”

I have come to realize that I prefer to be labeled as “brittle” or “labile.” It is important, I think, to realize and consciously accept the labels we choose to live with. The thoughts we think, and the feelings that support those thoughts, are the reality we experience.

I am not perfect. Not even close. I just shared a post on Facebook that stated, “World’s Okayest Diabetic.” Some days I do better than other days,

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Usually  I try to not go so high, but it obviously happens

but every single day, without fail, I am always intensely aware of the fact that I am diabetic, and it won’t go away, and I have no choice except how I choose to take care of myself. One of the earliest lifestyle changes I made was to not tell myself I “couldn’t” eat something, but to bargain with myself instead. If there are cookies at work and I want one, I simply have to forgo that pizza I thought I would have for dinner. Some nights I will even choose to eat cookies and have pizza for dinner! My mother raised a rebel!!

 

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So rare, but so exciting!

I do work very hard to keep my numbers as close to 120 as I can. It is a struggle that I wish I could walk away from. It is a way of life that I wish I did not have to live. It is a regimen of restrictions that I resent and sometimes refuse to acknowledge. But the truth is always the same: I am diabetic. I am insulin dependent. I am disabled.

I am in the process of trying to request what I consider to be “reasonable requests for accommodation” at work based upon my disability of having  a defunct pancreas. Mostly, I am hoping to emerge from under the oppression of being rumored as a bitch at work because people in other departments don’t know I am diabetic, nor do my bosses understand the extent of which my diabetes can affect my personality when my blood sugars are fluctuating. Like I said earlier, I have always been extremely brittle. My immediate boss simply believed the rumors of what a bitch I was because he knew I was on the pump and that was supposed to “cure” my diabetes. I had no idea he thought I was “cured.”

I live a life that makes me happy. It isn’t the life I thought I would be living when I was thirty. Nor does it resemble anything like the life I thought I would be living when I was twenty. Instead, it is the life I find myself living now that I am forty. I play soccer, drink beer, camp under IMG_2209the stars, eat out with friends, ride a bike everyday, grow my garden, practice my fiddle, and learn new ways of dealing with the depression that hounds me because of the diabetes. Everyday is an opportunity to learn something new about myself. Not everyone has the chance to test their willingness to stay alive and healthy. For most people it is a default. They simply have to wake up and get dressed and make it to work. There are no life and death moments in their daily existence. They know they are alive and that they will remain alive for at least the next twenty-four hours. It is not a struggle for them. I envy those people. But, at the same time, I wouldn’t trade places with them even if it meant having a pancreas that likes me enough to do its job on its own.

 

 

Hmmm…..

I am trying to figure out how blogging works. I have been browsing the tutorial pages, but I am not making much progress in understanding what they are telling me. I have spent the past two days trying to write “About Me” and I’m still not sure if this will work, but I’m not giving up! This project is too exciting!! So, hang in there and I promise it will all work out in the end!

via About Me

A New Beginning Unexpected…

I am one of the most technologically illiterate individuals I know. Hell, I was born before the first Star Wars movie was made. People still knew where Jimmy Hoffa was on the day I was born (most people I come into contact with today don’t even know who Jimmy Hoffa was, or Ollie North). I used to say I was born when Jimmy Carter was president, but when I looked it up on a whim, I learned that Gerald Ford was president on the day of my birth. There are days when I feel OLD.

This blog is my introduction into the world of technology and I can barely figure out how to get my profile picture displayed.

That being said, I think it is definitely worth the stress of learning a new skill to be able to share my story with anyone willing to read my ramblings. I have no idea how this adventure will turn out in the end, but I am excited to enjoy the ride. For my  very first posting I am proud to have anything posted at all. I feel extremely accomplished to be able to press the “Publish” button and have an actual result materialize. Especially considering the fact I established this blog while sitting at one of my favorite pubs drinking a bourbon-barrel aged barleywine  with an ABV of 13.3% (Holy Shit, how will I even be able to ride my bike the four blocks required to get home???). At this moment, I am striking the hell out of my keyboard just trying to type and spell these words correctly (I want to throw this damn contraption across the room in frustration, but I am still slightly sober enough to realize I will regret the action in a few hours before going to bed).

I am beginning the journey of this blog because I need an outlet. I need a way to express my frustrations of living with Type 1 Diabetes. I need an opportunity to tell my story because I am silently going insane trying to live a life I was never supposed to have. I need a reason to believe that there is a PURPOSE for my life. I need something that will allow me to feel as if I have a chance at success and achievement.

I welcome the chance to experience something new and exciting. I am thrilled to have a chance to expand my horizons and to increase my comfort zone. I welcome the people who will find an interest in my story and are willing to join me in my experience of the world we live in. I know this life is worth living. I know this for a FACT because I have, over the past ten years, survived several diabetic experiences that should have honestly ended my life.

Whomever you choose to place your belief for life and existence in–God, the Universe, or Kermit the Frog–has chosen to keep me alive through both high and low blood sugar extremes. There are days I am grateful, and there are days I wish it would all simply end and let me be in peace. But, today is a good day. Today is the day I decided to begin sharing. And to share is to love and be at peace.